A Parallel Arts Festival at the 14th World Congress of Bioethics

Dec 03 - Dec 06, 2018

A Parallel Arts Festival at the 14th World Congress of Bioethics

Organised by: Manjulika Vaz, Mario Vaz, Olinda Timms and Radhika Hegde, Division of Health and Humanities, St John’s Research Institute, Bangalore

In keeping with the theme of the congress ‘Health for All in an Unequal World’, the Health and Humanities Division of St. John’s Academy of Health Sciences, has curated the following films, installations, exhibitions, theatre events, literary sessions and performances for the Parallel Arts Festival.

 

Date: December 3rd, 2018 (Pre-Congress) - as a part of the 12th World Congress of the International Network on Feminist Approaches to Bioethics
Time: 16.15 - 17.45
Venue: Lecture Hall 1, St. John’s Medical College - Golden Jubilee Building
"Megha's Story" - Enabling conversations around maternal mental health through Forum Theatre. Megha, a new mother, struggles with feelings of guilt, anger, fear, and frustration all alone, though she is surrounded by a loving family. Forum Theatre creates dialogue around Maternal Mental Health. The process will be participative and handled as a workshop with an experienced facilitator, Dr Radha Ramaswamy, the founder trustee of the Centre for Community Dialogue and Change (CCDC), a Bangalore based organisation that is now an internationally recognised centre.

Forum Theatre is a form of drama, rooted in Theatre of the Oppressed, which recognises the importance of affording voice to disadvantaged groups in society. The audience will not be passive spectators who merely watch a performance, they become spect-actors! They can change Megha’s story!

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Date: December 4th to December 6th , 2018 (Main Congress)
Time: All day
Venue: Academic Block, St. John’s Research Institute
“The Dolls speak of an unequal world” – an exhibition by Francoise Bosteels, an iconic doll maker who is inspired by people’s day to day life, their gripping struggles, pains and dreams. These dolls reflect Indian life in all its complexities. The dolls are most creatively and intricately crafted and touch you not only with their breath-taking beauty and variety but with their accompanying poetry and reflections. The dolls speak of enduring tragedies on one side and of communities’ resourcefulness and resilience and a spirit of hope on the other.

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Date: December 4th to December 7th, 2018 (Main Congress)


Time: All day
Venue: Cobbled walkway, St. John’s Research Institute 
“Talking Hands” – an outdoor installation using reflective photography, raises the voice of people at the margins….“Do I matter?”. Conceptualised by Mario Vaz and produced by the Divisions of Bioinformatics and Health and Humanities, St. John’s Research Institute.

 

Time: All day
Venue: Around St John’s Main Auditorium 
“Health for All Goal” – A historic photo journey of documents from 1946 – 2011 (India And Global). The journey towards Health for All in South Asia began with the Bhore Committee report of 1946 and globally with the Alma Ata Declaration in 1978. In this photo journey collated by Dr Ravi Narayan of the Society for Community Health Awareness Research and Action (SOCHARA), 25 key historical documents and publications are presented with some of their key recommendations that focus on challenges towards Health for All globally and locally.

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Date: December 5th , 2018 (Main Congress)


Time Slot: 11:45 - 13:15 (Pre-lunch)
Venue: Pope Paul VI Auditorium, St. John’s Research Institute
Duration: Film 60 minutes (Moonshine Productions, Australia); Discussion time 30 minutes
Language: English/English subtitles
Hippocratic - 18 Experiments in Gently Shaking the World – A Biographical Feature Film about Dr MR Rajagopal, the pioneer of palliative healthcare in India. The film is a platform for creating more conversations around palliative care, on the access to and availability of pain relief and to demand a healthcare system that treats the person and not just the disease.

Dr MR Rajagopal, Chairperson, Pallium India, Thiruvananthapuram will be present.

 

Time Slot: 14:15 - 15:45 (Post-lunch)
Venue: Pope Paul VI Auditorium, St. John’s Research Institute
Duration: Films 60 minutes; Discussion time 30 mins
The hidden ethical challenges of rare diseases will be revealed through a series of short films covering debilitating illnesses such as muscular dystrophy, hydrocephalus and spina bifida, which highlight the multiple issues faced by patients, especially children with rare diseases. They point to the gaps in healthcare and education facilities that need to be addressed. Dr Namitha A Kumar, Research Director, Centre for Health Ecologies and Technology, International Institute of Art, Culture and Democracy, Bengaluru in collaboration with "OPFORD" - Open Platform for Rare Diseases has sourced the films and will share her own challenging life story. The Co-Directors of  ‘Rooting for Roona’, Pavitra Chalam will be present.

Films: Living with Spina bifida - Shakti Krishnan; Making a Muscle - Dystrophy Annihilation Research trust; The Indomitable Human Spirit - Maya Chandra films; Paper planes - dreams of a million children - One Step at a Time; Rooting for Roona [trailer] - Directors: Pavitra Chalam and Akshay Shankar.

 

Time Slot: 14:15 -15:45 (Post-lunch)
Venue: Maj Gen SL Bhatia Museum of the History of Medicine, St. John’s Research Institute
Duration: 90 minutes
A Museum tour: A walk through key events in history that have shaped today’s ethical positions in medicine, healthcare and research. The tour will be guided by Mario Vaz and will engage with exhibits at the Maj Gen SL Bhatia Museum of the History of Medicine. The focus will be historical events that raised ethical conundrums. Students are encouraged to opt for this. [MAXIMUM of 20 persons can be accommodated].

 

Time Slot: 18:00 - 19:15 
Venue: St. John’s Main Auditorium
Duration: 80 minutes
“Monsters in the Dark” – A Stage Adaptation of Siddharth Mukherjee’s The Emperor of All Maladies: A Biography of Cancer brought to you by Bangalore Little Theatre in collaboration with St. John’s Research Institute, Bengaluru and Tata Memorial Centre, Mumbai. For the first time ever, this Pulitzer winning tome, described by the jury as ‘an elegant enquiry, at once clinical and personal’ will be brought alive on stage with stories of Sidney Farber, Gordon Zubrod and Carla Reed. The oncogene story is told from the perspective of lab mice- three mice telling it as if they were there to see it unfold!

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Date: December 6th, 2018 (Main Congress)


Time Slot: 11:45 – 13:15 (Pre-lunch)
Venue: Pope Paul VI Auditorium, St. John’s Research Institute
Duration: Film 64 minutes with Film Artist Book Website Installations; Discussion time 20 minutes
Language: English-Spanish
“The Poetics of Fragility” - This Transmedia Project done in 2016 by Nicolás Grandi & Lata Mani is a kaleidoscopic bilingual exploration of the texture, vitality and aesthetics of fragility.  It interweaves stories of bodily frailty with optical vignettes of nature’s delicacy to reclaim fragility as intrinsic to existence, not something to be bemoaned or overcome. Its form - "video-contemplation," is an experimental conception that Grandi & Mani have developed to explore the audio-visual medium as a sensuous tool for social inquiry with a philosophical impulse. The film maker Lata Mani will be present to lead the discussion. The Poetics of Fragility is an ongoing transmedia project: film, website, artist book, installations. http://www.thepoeticsoffragility.com.

 

Time Slot: 14:15 – 15:45 (Post-lunch)
Venue: Maj Gen SL Bhatia Museum of the History of Medicine, St. John’s Research Institute
Duration: 70 minutes (including discussion)
Performing Resilience: Illness, identity and narrative – is an engagement with issues of stigmatisation, vulnerability and invisibilisation of illness. It also explores illness identity, culture and resilience narratives. Consistent engagement with communities has exposed fractures in illness experience discourses that upholds stereotypes of ability, functionality and representations of the illness experience. It aims to build a larger narrative that breaks silences and speaks to structures and systems of health care and health systems. 

Performed and facilitated by Benson Issac and Shreelata Rao Seshadri, faculty members of the Health, Development and Society Initiative of the Azim Premji University, Bangalore.

 

Time Slot: 14:15 – 15:45 (Post-lunch)
Venue: Pope Paul VI Auditorium, St. John’s Research Institute
Duration: 90 minutes
Reflective Narratives: A literary panel – is an interaction with Indian writers on the development of the reflective narrative as a means to understand the human condition and the underlying ethics of social behaviour. The panel will have medical and non-medical story tellers such as rural surgeon/author Kavery Nambisan and journalist/author Gita Aravamudan who use the genre of narrative fiction and non-fiction to create powerful, reflective stories.

A Booklet of reflective narratives “Beyond Cure - An Anthology of Reflections on Universal Health Care” by students and faculty of St. John’s Medical College will be released and excerpts narrated.

 

Time Slot: 18:00 – 19:00
Venue: St. John’s Main Auditorium
Duration: 70 minutes including interaction with the audience
Expressions of Creativity: Interpreting the Congress theme through classical and contemporary dance performances: Dr Anuradha Venkataraman, a professional Bharatnatyam dancer and Dr Vaibhavi Joshipura, a trained Kathak dancer and a Professor of Dentistry, have more than a decade’s experience in these classical dance forms of India and their performances will be based on stories taken from the Indian Classical texts. Dr Venkatraman will depict women’s sexual rights in the context of a story from the Mahabharatha. Dr Joshipura will bring out the physical and mental well-being of an expectant mother by enacting an episode from the Ramayana. The dances will begin with a 5-minute explanation of the theme. The performances will have a vocalist accompanying the dancers.

A combination of the Classical and Contemporary style of dance will be performed by the undergraduate students of the Performing Arts Department of Christ University and will be an interpretation of the theme of the Congress.